About International Pemphigus & Pemphigoid Foundation Natural History Registry

What is a Patient Registry?

A patient registry is an online data system that systematically collects, stores, and retrieves patient data for analysis in research studies.  The IPPF Natural History Registry serves to:

 What types of data will be collected in the Power of Patients Registry?  Is the data secure?

The IPPF Natural History Registry collects data on the following topics:

The IPPF Natural History Registry follows strict government guidelines to assure patient information is protected. The registry platform is served over HTTPS, providing encryption of traffic to prevent eavesdropping and man-in-the-middle attacks. Communication between the registry platform application server and the database are also encrypted.